Jolianne is doing very well this weekend. On Saturday they stopped the sedation they had her on in an effort to keep her from pulling on her lines. Saturday evening they called us to let us know that the IV in her arm had leaked into her arm and chest causing it to puff up. They took the IV out and put it in her leg instead. The swelling went down and her arm and chest looked back to normal. On Sunday morning they did a chest x-ray and found out that her oxygen tube was a little too far down so they took it out and reinserted it in the correct spot. When Jeremy and I were with her on Sunday they took out the umbilical line that was giving her nutrition because it was causing some swelling around her belly button. Jeremy assisted the nurse by keeping her legs still. She was very upset when the nurse was taking it out. Her heart beat increased to 179 beats per minute. It is usually 145 bpm. When they were done with that, I got to change her diaper. I was so nervous. I have never changed such a tiny little diaper before. It was harder than I thought it would be because of all of the stuff hooked up to her. I was afraid of knocking something loose. Since we have been home Jeremy called to check on her and the nurse said she is doing fine. Tomorrow they are suppose to start a PIC line to give her more nutrition. They want to do her surgery when she is at 5 lbs. Right now she weight 4 1/2 lbs. They say that she should be up to 5 in a couple of weeks. Please keep our little angel in your prayers.
Love,
Crystal and Jeremy
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3 comments:
I am so glad to hear that she is doing to so well! I was so glad to be able to see her this weekend. She is just precious! I really enjoyed having her brothers this weekend. I am definitely keeping her and ya'll in my prayers. I hope that she has a really good week :O)
Love ya'll,
Kim
Good Morning Guys,
Thanks for the update and the video! I must look at your site 10 times a day to check for news or new pics.
Todays post certainly brought back some memories of when Christopher was in the hospital! Every day held a roller coaster of ups and downs. Reading about it on the blog helps to understand what's happening. In fact sometime better than the phone since what I thought I heard Jeremy say was that Mommy's arm swelled up from the IV!
"Little JoJo please keep fighting and we'll keep praying"
Love you all,
Nana and Papa
Loved seeing the video since I am unable to come to see Jolianne right now. She is so precious. You are in my prayers.Can't wait to see her in person. Love Barb
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