Well, a lot has gone on since I last wrote. They took Jo Jo off the breathing machine on Tuesday evening. She did very well all through the night. They took out the Central line that was in her right leg also. Since she has the PICC line, they didn't feel like she needed the Central Line. They said that the placement of that line in her groin area was at great risk for infection because it is in her diaper area. The PICC line is a long term line, so as long as they have it established they really don't need another one. Wednesday morning she was running a fever. They took some blood cultures and sent them to the lab for testing. She was also having some trouble with her lungs. Her right upper lobe had collapsed causing her to not be able to oxygenate her body properly. Because she was having to work so hard her heart rate was up in the 180's. She also started to have labored breathing. Her stomach would suck in under her ribs when she would take a breath. They decided to put her back on the breathing machine to help get her back where she needed to be. They didn't want her body to go too long without having sufficient oxygen because that can cause organ failure. We were very sad that she had to be put back on the breathing machine. We understand why it had to happen, but it is still hard to see her in so much discomfort. When I got to the hospital today, she was awake and having respiratory therapy. She seemed to enjoy it. They give her a massage on her back to get her lungs free of an secretions that build up. She used to hate it, but now she really enjoys it. After her massage she was wide awake. I talked to her for a little while and told her some stories. She was really paying attention and seemed to enjoy the stories I was telling her. When I would walk away she would get upset and cry. It really made me feel good to know that she liked me being there and that she was aware of my presence. We were really hoping that Jo Jo would be off the breathing machine for Christmas so that we could hold her, but it seems like that may not happen. We will just have to wait and see. It is 8 days away so you never know!!!
2 comments:
I love the pics you have posted. They are so sweet. So sweet how she recognized the fact that you were by her bedside and when you were not! (and JoJo tell mommy not to use that papa bear voice anymore hee hee). Love ya'll!
Kim
Very cute pictures! J0Jo you look soo sweet in your big girl baby bed! And I know it is making Mommy and Daddy very happy that you are showing them you know they are there :-) Im like Aunt Kim. I love the Goldilock story of when Mommy was reading to you each time she used the papa bear voice you cried. But, when patted you would stop and then start again when it was papa bear the next time. This was a very special present for Mommy to know that you can hear and respond when she reads you stories. I bet you like it when Daddy sings to you to! :-) Love you lots!
Nana and Papa
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