Thursday, December 3, 2009
Yesterday they had to stop Jo Jo's feeds because her belly was getting a little too extended. They took an x-ray this morning and said that everything looks ok. She is scheduled for her Heart Catheterization today. They said that she would be 3rd case so it will be later in the day when they take her back. Closer to 3 pm or 4pm. Because she is the last case it is possible that they will move her to tomorrow if the other two cases take longer than expected. They are sedating her now so that she can get plenty of rest. It has become so hard for her to do normal functions that they feel it is just better if she sleeps so that she doesn't keep having her heart rate and breathing dip down so low. I really hope that they can go in and fix some of her collateral arteries today. I hate to see her in such a critical condition. It seems like she is worse off now than she was before her surgery. I know that they said it would be a two step process, they failed to mention that in between procedures that she would suffer so much. Her hand is still swollen from the blood clot. They said last night that it would take a few weeks before it gets back to normal. Originally we were told a few days. Things change everyday. I just feel so worn down at this point. We are on day 65 with no expectations of when she will possibly get to go home. I try to have goal markers but like I said, things change daily. One minute they are talking about moving her out of ICU and the next minute they are putting her back on the vent. At first we hoped that she would be home for Christmas, then we hoped that she would be home at the first of the year. I just don't know anymore. She is on her own schedule, not mine. I have gotten to where I dread calling to check on her because I am so scared of what they will tell me. There was a point where it was always, "She is doing fine, just resting." Now when we call there is always something scary going on. I just wish that she could be better. I want her to be comfortable and happy. Maybe they can get some things resolved today and get her on the way to recovery.
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2 comments:
I am praying hard that things get resolved very quickly for her. I wish I could take away the suffering that you and Jeremy have to go through. I love ya'll and I am here for ya'll with whatever I need to do. Praying for her heart cath today and praying that God continues to give ya'll the courage and strength ya'll need on this roller coaster ride.
Love ya'll
Kim
JoJo, this is your Nannie Norma. I pray for you every moment, sweetie, and I ask God to heal your little body. I ask the good Lord to carry you in the palm of his hands and that he guide the surgeon's while repairing your little heart. I love Jojo and I can't wait to see you, and carry you like I did your mommy when she was a baby. May God continue to bless each of you, your mommy, daddy, Andy and Ronnie. (I love you!)
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