Making Amazing Progress

I know it has been a while since I have written. We have been so busy lately. With the boys off for Christmas it has been a little bit of an adjustment to my routine with Jo Jo. We had a really great Christmas and the best present of all. On December 26 (Saturday) Jolianne was moved to the 8th floor. I was a little nervous as first because I heard that it was very different from the ICU. It is very different, I get to take care of Jo Jo and do regular Mommy stuff. Changing her diaper, rocking her when she is upset, getting her formula so that she can eat. I also get to get her dressed each day. I really like that part. I do have to call the nurse in to undo her PICC line because she has to clean it really well when we are done. I am giving her baths and changing her bedding too. They are working on taking her off of her cannula and just breath on her own without any extra help from the machine. They are also talking about getting rid of her PICC line because she is receiving all of her meds by mouth now. She is barley getting any pain meds and she is tolerating that just fine. She will probably have to go home with the feeding tube in because she has fed that way for 3 months. Once they change her feeds to bolus, we will start working with speech therapy again so that we can start practicing with a bottle. Once we get home she will continue to get speech therapy and physical therapy in our home so that she can get caught up on where she needs to be. They haven't really given us a go home time yet. They just say that it will depend on how quickly she can get to 1 hour on her bolus feeds. She has to be able to tolerate getting her food down in one hour. As usual we will just have to wait and see how she adjusts to everything. She has looked really great for the past few days!!!