Monday, November 30, 2009
Echo scheduled for today.
I am here at the hospital with Jolianne and we just finished reading our Christmas story. She was asleep the whole time but I read it anyway!!! I just love the book so much, we read it all the way through. They are changing Jolianne's bolus feeds from being extended over two hours to extended over 1 1/2 hours. This is in an effort to get her closer to normal feeding time. Jo Jo's PIV had to come out so they are going to attempt another IV. They may have to do one in her head if they can't get a good IV established in her extremities. They cannot move her to the 8th floor without an IV just in case they need it for something. They are also going to do a Heart Echo today to see what her heart is doing. The doctor said today that her pulmonary arteries have grown bigger over the last few weeks so they are going to talk to Dr. Forbess about proceeding on to phase 2 of her heart procedures. Dr. Forbess will decide when her wants to move forward and what he is going to do. There are a few different options for correcting the MAPCAs. He may send her to Cath Lab to get better pictures than the Echo can provide.
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2 comments:
Crystal Gail, I was talking with Burky and Marie today and we were thinking about Jolianne and how she was doing. Just wanted to let you know that Jolianne, you and your husband and the boys are all in our prayers! We all miss you!
Ken
I am so glad that you have been able to get back in your routine and getting to go up and spend time with and read to your precious little girl! She was probably dreaming sweet Christmas dreams as your read her story as she slept :O)
Love ya!
Kim
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