They pulled Jolianne's PICC line last night because it turned out that it did have a blockage in it. That is what was causing her to have swelling and pain in her right hand yesterday. They are ordering a chest Echo to be done today because her Chest X-Ray looked a little wet this morning. She has some fluid buildup but they don't know exactly how much. They were able to establish a PIV in her left foot in place of the PICC line. She is receiving a blood transfusion right now because her numbers were low. They have also decided to change her Methadone and Valium to every 12 hours instead of 8 so that she can be more awake more often. They are changing her Lasiks to IV instead of by mouth so that maybe it will be absorbed better. She is having some problems with swelling again. She is still tolerating her bolus feeds very well but they haven't made any changes to her feeding schedule.
Jeremy and I and the boys put our Christmas tree up yesterday. We decided to put the tree in Jo Jo's room in honor of her having to be at the hospital. We used one of her little blankets under the tree for a tree skirt. I know it may seem weird to have a big Christmas tree in a baby's room, but it is special to us. It's our way to be able to include Jo Jo in our Christmas morning when we open gifts from Santa. Yesterday we were talking about how much fun it will be next year when Jolianne gets to be home with us.
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Good evening little one,
I just heard that your Mommy got to hold you tonight. I bet you loved that! Your little cousin Emma really enjoyed her visit with you today. She thought you were bee- u-ti-ful!
I think putting the Christmas tree in her nursery was a very special and appropriate thing to do. What a loving family little JoJo has. Back in the day- people would put a single candle in the window during the season for their loved ones who were away at Christmas time. You will have a whole tree in JoJo's windo :-) Keep the faith guys. With God's blessing I know that next Christmas will be much better with your beautiful little girl at home.
With llove,
Nana and Paoa
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