Spend the Night Party

Last night Jeremy and I went up to the hospital to spend the night with Jo Jo. It was really good to get to spend so much time with her. When we got there she was a little fussy so they let me hold her. It had been over a week since I had held her because of her surgery. It felt so nice to have her snuggled in my arms!!!! She stayed awake the whole time I was holding her. After I held her I started reading her the Wizard of Oz. I have never read the book, only seen the movie. The book seems to be very different from the movie. I am looking forward to reading it with her. She woke up a few times in the night crying. One time she held her breath for a little while and she turned purple. He stats went way down and her machines where blinking red. Most of the time when we are there it blinks yellow which means slight problem. I really don't like it blinking red!!! She did recover on her own and managed to get back to sleep. She woke up again around 3:00 crying. The nurse was able to get her to calm back down again and she didn't have any red lights. When we woke up this morning her right hand was very swollen. The nurse tried to give her some calcium in her PICC line and she started screaming. We are very concerned about this. The doctor ordered that she receive all medicine by mouth, which means down her NG tube that she gets fed through. They are going to leave her PICC line in because it is the only IV line that she has right now. They haven't talked anymore about Cath Lab and they didn't mention her going up to the 8th floor while we were there. I hope that she doesn't continue to have problems with her sats dropping so low when she gets mad. I really want to see her on the 8th floor, but I want to be sure that she is ready. She weighed in last night at 7 lbs 10 oz. She is getting so big. I am so proud of how strong she is. She keeps fighting every day. She is my little trouper!!!!